Trusted by 100+ people

Patient-Centered Care for Rare Disease Warriors

Advocacy, Education & Empowerment for Rare and Autoimmune Disease

Nurse-Led Advocacy for Rare and Autoimmune Conditions

The Inflamed Nurse is a nurse-led wellness and advocacy platform dedicated to empowering individuals living with rare, undiagnosed, and autoimmune conditions. Founded by Alicia Truelove, MSN, RN, CV-BC, NPD-BC, a nationally recognized nurse and rare disease advocate, the brand combines clinical expertise with lived experience to offer compassionate care, education, and support. Through storytelling, advocacy, and evidence-based tools, The Inflamed Nurse helps patients navigate complex health journeys with confidence, community, and clarity.

Signature Topics & Areas of Expertise

Creating a World Where Mental Health Is Valued

Brand Ambassador / Sponsored Campaigns

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Media Contributor / Commentator

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Podcast Guest

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Author Appearances & Book Promotion

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CE Instructor / Webinar Speaker

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Panelist / Event Moderator

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Panelist / Event Moderator

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Credentials & Professional Titles

Credentials:

MSN, RN, CV-BC, NPD-BC.

Professional Titles

Founder, ART Professional Development Services. Co-Founder, Divine Direction Nurse Advocates

Guiding You from Overwhelmed to Empowered

Listen & Learn

We start by understanding your unique story—your symptoms, challenges, and goals.

Plan & Empower

Together, we create a personalized care or advocacy roadmap with tools, education, and support.

Advocate & Guide

We stand by you through every step—appointments, decisions, and beyond—so you're never alone.

Start Your Healing Journey Today

Schedule a personalized, nurse-led session designed to support your unique autoimmune or rare disease journey. Whether you need symptom guidance, advocacy help, or wellness planning, we’re here to empower you with compassionate care and clinical insight.

Media Features or Appearances

YouTube/Podcasts:

- HealthETalks "Alicia Truelove"
- CitizenNurse "CitizenNurse & The.PeoplesNurse"
- CitizenNurse & Friends: How it Began Ep.1, Pt.1
- CitizenNurse & Friends: How it Began Ep.1, Pt.2
- CitizenNurse & Friends: How it Began Ep.1, Pt.3
- CitizenNurse & Friends: How it Began Ep.1 Pt. 4
- CitizenNurse "Civic Health Month & VotER, Presented by the California Advocacy Summit (August 6, 2024)
- Ask Nurse Alice, Title TBD

Print:

- Co-Author, “Fostering Diversity, Equity, Inclusion, and Belonging Through the Lens of Gratitude.” Nursing Administration Quarterly, 2024.
- AskNurseAlice.com, "Living with a Rare Disease: When the Nurse Becomes the Patient." May 2025.
- Minority Nurse, "Sticker Shock in Aisle 4: How New Tariffs Could Raise Prices on Everyday Medical Essentials." Expected June 2025.
- National Organization for Rare Disorders, "Honoring Nurses on International Nurses Day: The Bridge Between Rare Disease and Hope." May 2025

Panel Discussions/Event Appearances:

- Panel Discussion Host, “Nurses in Media Day.” ANA\California, March 2023.
- Panel Discussion Host, “Honoring Diversity, Equity, Inclusion, and Belonging Through Leadership Styles.” Association of California Nurse Leaders, Los Angeles/Coastal Chapter, December 2023.
- Panel Speaker, “Possibilities in Nursing Leadership.” NAHN Orange County Chapter General Membership meeting, February 2024.
- Presenter, “Nonpartisan Healthcare- Based Civic Engagement.” American Nurses Advocacy Institute, May 2024.
- Presenter, “Nonpartisan Healthcare- Based Civic Engagement.” City of Hope Government Relations, Advocacy in Nursing Committee, July 2024.

Film:

- "Pursuit of Loneliness" 2012. Role: Nurse

Community Wellness Support

The Inflamed Nurse community changed my life. Alicia’s support groups and wellness resources helped me better manage my autoimmune condition while feeling less alone in the journey
Timothy Wills
Virtual Support Group Member

Brand Collaboration

Partnering with Alicia was one of our most meaningful campaigns. Her voice carries both authority and compassion, and her community trusts her implicitly. She’s the kind of ambassador brands dream of
Adam Forester
Brand Manager, HealWell Nutrition

We collaborate with many partners to provide the best service.

Speaking Topics or Workshop Titles

Inflamed and Empowered: Navigating Life with Autoimmune and Rare Conditions

A holistic, nurse-led workshop offering practical tools for symptom management, self-advocacy, and emotional resilience for those living with rare, undiagnosed, or autoimmune conditions

Tracking Truth: How to Use Symptom Journaling to Advocate for Your Health

This session teaches participants how to use structured journaling to recognize patterns, improve communication with providers, and gain clarity in complex health journeys.

Nursing Advocacy in Action: Championing Rare Disease Patients

This workshop explores the critical role nurses play in advocating for rare and undiagnosed disease patients at the bedside, in care teams, and within health policy. Attendees will learn how to identify advocacy opportunities, communicate patient needs effectively, and drive equity through nurse-led initiatives.

Frequently Asked Questions

The Inflamed Nurse is a nurse-led wellness and advocacy platform created by Alicia Truelove, MSN, RN. It supports individuals living with rare, undiagnosed, and autoimmune conditions through expert-led education, symptom tracking tools, support groups, and nurse-driven advocacy.

Anyone living with a chronic, autoimmune, or rare condition—as well as caregivers, nurses, and health professionals seeking to better understand patient experience—can benefit from our resources, events, and advocacy support.

Yes! Most of our offerings, including support groups, speaking engagements, and wellness consultations, are available virtually to ensure accessibility regardless of location.

Visit the “Book a Session” section on our website or email us directly at info@themediarx.com with your event details. We’ll respond with availability and speaking topics.

Alicia covers topics such as rare diseases, inflammation, patient advocacy, civic engagement in healthcare, social determinants of health, and nurse-led leadership. Her workshops blend clinical insight with personal lived experience.

Yes! We offer continuing education sessions, webinars, and consulting for healthcare professionals who want to integrate advocacy, health equity, and rare disease literacy into their care practices.